Started this discussion. Last reply by windsor 1 hour ago. 9 Replies 3 Likes
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others…Continue
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All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must…Continue
Started Apr 12 0 Replies 0 Likes
The Power of Community for Rare Disease Patients…Continue
Started Mar 21 0 Replies 0 Likes
The New York Times Sunday Review - The Opinion Page By LAURIE EDWARDS Published: March 16, 2013Source: …Continue
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Posted on April 27, 2013 at 6:45pm 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are uncomfortable, then you are free to keep searching for someone else. The best doctors are ones that spend time with you, listen to your concerns and take them seriously, and be willing to work with you to find the treatment that is best for you. If you find…
ContinuePosted on April 25, 2013 at 8:30am 0 Comments 0 Likes
Dear Amyloidosis Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s interview on Thoughbot would have realized by now how important your personal participation and activity in our site is. This is a site built for you: it is yours.
It kind of reminds me of that story of a…
ContinuePosted on March 26, 2013 at 1:08pm 0 Comments 0 Likes
Dear Amyloidosis Family and Friends,
I have been going through the many responses to the discussion “Lessons in Life” posted in all our 34 communities. The responses I got inspire me so much!
One comment sums it all in a word: Perspective.
Isn’t it true? Having illnesses, though certainly not enjoyable,…
ContinuePosted on February 26, 2013 at 8:35pm 0 Comments 0 Likes
Dear Friends and Family of Amyloidosis Support,
Recently I started a discussion on What’s the best thing you’ve done for yourself lately?
I am interested. Really. Not a ‘curious’ sense of interest. Everyone has a peculiar sense of feeling good which is unique from everyone else. My question is based on a sincere interest in knowing if anyone…
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Thanks, Louisa!
Ben...I sent this to Rose...is there anyone else that I should send it to???
Rose..Can this somehow be put on this Network...information for those in financial need: http://www.avmsurvivors.org/forum/topics/help-for-low-income-americans?com
Thank you so much.....Louisa
Welcome, Ben
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