First Time Users, Welcome!!!
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If you are new to this site, we are glad to have you here.
Here are a few tips for getting more familiar with this site.

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Things You Can Do With the Community
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Tell Us About You

Please fill out your profile so the other members will know your history with Amyloidosis. This will help your fellow members provide the best support possible! Everyone loves pictures, so upload yours if you can.

Join Us in Discussion

Visit the Discussion Tab and read some terrific Discussions about Fabry. It's easy to Reply by typing in the box and even Start your own Discussion by clicking Add. This gives the other members a chance to talk to you and respond and you will make some wonderful friends that way.

Have a Question? Ask Other Members or Moderators
There's a lot of new information at , so it's natural to have questions when you first join. :)
Your fellow members are always happy to help and answer questions, so ask them.
Also, you can always ask the Moderators. If you click on the Main Page Tab, that will show you the most current and up to date information available. On the left side you will see a list of this Community Moderators. If you have any questions, or concerns, please go to one of their pages (you can do this, just by clicking on their name) and they can answer any questions that you have.

Get To Know Other Members, Make Friends
Go to Members Tab to see other member profiles and read their story. Also under their picture, there will be an option to "Send a Friend Request." It's very similar to Facebook and other Social Networks, this gives you a chance to make friends with other members and exchange private messages.

Share Your Story With Us
We'd love to hear more about you. We are all here to support each other and share our stories so we can all benefit. You never know, you could tell your story and help someone else who is just getting started or you may get more support and information than you ever thought was possible. You may go to Share Your Story or Tips at the tab menu or you may send emails directly to stories@bensfriends.org.

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Whether you were just diagnosed or diagnosed 20 years ago, we've got something here for everyone affected by Amyloidosis - patients, family members and loved ones.

If you want to learn more about the features of this site please visit our FAQ page.

We look forward to getting to know you and are very happy you are here with us.
Again, our warmest welcome!!!

Ben's Friends Crew
(www.bensfriends.org)