What is AmyloidosisSupportNetwork.org?
AmyloidosisSupportNetwork.org is a dedicated patient-to-patient support community for families affected by Amyloidosis. AmyloidosisSupportNetwork.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Amyloidosis.
Who can join AmyloidosisSupportNetwork.org?
If your family has been affected by Amyloidosis, consider AmyloidosisSupportNetwork.org your second home. AmyloidosisSupportNetwork.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Amyloidosis?
Amyloidosis refers to a variety of conditions whereby the body produces "bad proteins", denoted as amyloid proteins, which are abnormally deposited in organs and/or tissues and cause harm.
You can learn more about Amyloidosis at Wikipedia.org
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.