What do you like to do to occupy your time with?
For those of you who aren't able to work any more. What do you like to do to fill your time? If you…See More
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About
What is Amyloidosis?
Amyloidosis is a disease that occurs when substances called amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ. Amyloidosis is rare, and the exact cause is often unknown. Treatments are available to help you manage your symptoms of amyloidosis
Forum
What do you like to do to occupy your time with?
Started by Ben Munoz in General Discussions 3 hours ago. 0 Replies 0 Likes
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
What type of music comforts you?
Started by Armando Abrero in General Discussions. Last reply by dancermom 9 hours ago. 1 Reply 0 Likes
Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're looking for comfort?Continue
New Partner - The Social Security Law Group
Started by Louisa Marion's Daugher in General Discussions. Last reply by windsor 13 hours ago. 6 Replies 2 Likes
For any of our Members that are having difficulty applying for Social Security Disability, we have a new Partner that can assist you! The link is under Partners on the Main Page on the bottom right side. (…Continue
Amyloidosis articles
Started by ga_peach in General Discussions. Last reply by windsor 19 hours ago. 8 Replies 3 Likes
have many medical articles pertaining to all different types of amyloidosis. If you have an interest in learning more about a specific type of amyloidosis please let me know what the involved organ is and I will send you some articles.Continue
Latest Activity
windsor joined Louisa Marion's Daugher's group
Primary Amyloidosis (AL)
Primary amyloidosis is an acquired plasma cell disorder in which a monoclonal immunoglobulin light…See More
windsor replied to Louisa Marion's Daugher's discussion New Partner - The Social Security Law Group"Thank you he is still taking the chemo and hopefully the SCT will happen down the…"
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This Week On Amyloidosis Support Network
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Support Group MeetingPosted by ga_peach on April 7, 2013 |
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More than one family member with AL amyloidosis?Posted by TJ on April 24, 2013 |
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Lessons in LifePosted by Armando Abrero on March 16, 2013 |
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Are you taking supplements?Posted by dancermom on May 7, 2013 |
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We are here if you need us!Posted by Louisa Marion's Daugher on May 17, 2013 |
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Best of Ben's Friends
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Bens Friends Blog
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Blog Posts
Preparing For An Appointment With A New Doctor
Posted by Ben Munoz on April 27, 2013 at 6:45pm 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
ContinueApril 2013 Community Newsletter
Posted by Ben Munoz on April 25, 2013 at 8:30am 0 Comments 0 Likes
Dear Amyloidosis Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s …
Continue Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando Abrero on April 21, 2013 at 11:00am 0 Comments 0 Likes
Baylor College of Medicine Article Featured Ben's Friends
Posted by Armando Abrero on April 17, 2013 at 10:30am 0 Comments 0 Likes
Coping with a rare condition stretches our resiliency and, with a little help from friends, triumph through adversity.
The story of…
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