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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
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About
What is Amyloidosis?
Amyloidosis is a disease that occurs when substances called amyloid proteins build up in your organs. Amyloid is an abnormal protein usually produced by cells in your bone marrow that can be deposited in any tissue or organ. Amyloidosis is rare, and the exact cause is often unknown. Treatments are available to help you manage your symptoms of amyloidosis
Forum
What do you like to do to occupy your time with?
Started by Ben Munoz in General Discussions. Last reply by windsor yesterday. 11 Replies 3 Likes
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others (including myself) come up with new things that we…Continue
What type of music comforts you?
Started by Armando Abrero in General Discussions. Last reply by Chris on Tuesday. 6 Replies 1 Like
Of course, there is no right or wrong answer. What type, brand, era, genre of music do you listen to when you're looking for comfort?Continue
Excellent Resources for Amyloidosis Patients
Started by dancermom in General Discussions. Last reply by Louisa Marion's Daugher on Tuesday. 2 Replies 2 Likes
If you need information, I recommend this wonderful group of sites for amyloidosis patients:Amyloidosis Support Groups Inc. www.amyloidosissupport.orgToll Free Hot/Help…Continue
New Partner - The Social Security Law Group
Started by Louisa Marion's Daugher in General Discussions. Last reply by windsor on Sunday. 6 Replies 3 Likes
For any of our Members that are having difficulty applying for Social Security Disability, we have a new Partner that can assist you! The link is under Partners on the Main Page on the bottom right side. (…Continue
Latest Activity
Joanie replied to Kay heaton's discussion My Amy is in the kidneys,skin,heart, tongue. in the group Primary Amyloidosis (AL)"As I am reading this, I am on my way home from Mayo Clinic where I had my second visit for…"
Primary Amyloidosis (AL)
Primary amyloidosis is an acquired plasma cell disorder in which a monoclonal immunoglobulin light…See More
ModeratorLouisa Marion's Daugher left a comment for Sunny
"Welcome to the Amyloidosis Support Network, Sunny! My Mom passed away 20 years ago due to…"
ModeratorScott Orn replied to Kay heaton's discussion My Amy is in the kidneys,skin,heart, tongue. in the group Primary Amyloidosis (AL)
"thanks so much for sharing. helps everyone."
Indians fan posted a status"Been prescribed Opium to try and help the diareah. Found out it would cost $700. per month! Anyone had any experience with this drug?"
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This Week On Amyloidosis Support Network
| 1 |
What type of music comforts you?Posted by Armando Abrero on May 20, 2013 |
| 2 |
What do you like to do to occupy your time with?Posted by Ben Munoz on May 20, 2013 |
| 3 |
Excellent Resources for Amyloidosis PatientsPosted by dancermom on May 21, 2013 |
| 4 |
Amyloidosis articlesPosted by ga_peach on April 4, 2013 |
| 5 |
New Partner - The Social Security Law GroupPosted by Louisa Marion's Daugher on January 27, 2013 |
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Best of Ben's Friends
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Bens Friends Blog
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Blog Posts
Preparing For An Appointment With A New Doctor
Posted by Ben Munoz on April 27, 2013 at 6:45pm 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are…
ContinueApril 2013 Community Newsletter
Posted by Ben Munoz on April 25, 2013 at 8:30am 0 Comments 0 Likes
Dear Amyloidosis Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s …
Continue Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando Abrero on April 21, 2013 at 11:00am 0 Comments 0 Likes
Baylor College of Medicine Article Featured Ben's Friends
Posted by Armando Abrero on April 17, 2013 at 10:30am 0 Comments 0 Likes
Coping with a rare condition stretches our resiliency and, with a little help from friends, triumph through adversity.
The story of…
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